tag:blogger.com,1999:blog-3005509180620478267.post5454673229180353779..comments2023-10-20T06:52:09.105-05:00Comments on SAMANTHA HOFFMAN: Ever heard of Dupuytren's Disease? (Update)Samantha Hoffmanhttp://www.blogger.com/profile/02689498125987433143noreply@blogger.comBlogger30125tag:blogger.com,1999:blog-3005509180620478267.post-47871602048946884232023-09-05T13:29:31.800-05:002023-09-05T13:29:31.800-05:00Dear UnaffiliatedIndie,
I had another injection ab...Dear UnaffiliatedIndie,<br />I had another injection about 10 years ago and at that time the doctor DID use anesthetic and it was covered by my insurance. I have to say, tho, that even with anesthetic it was still painful, though not as much as without.<br />All that said, after all these years my hand has only gotten worse and in December I am having surgery.<br />I hope you can convince your Samantha Hoffmanhttps://www.blogger.com/profile/02689498125987433143noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-90204951001106611322023-09-05T11:12:26.727-05:002023-09-05T11:12:26.727-05:00I hate to break the news, but both in 2017 when I ...I hate to break the news, but both in 2017 when I FIRST had Xiaflex injected, and this very week in 2023 when I'm having a re-do, most doctors do NOT use anesthetic when injecting Xiaflex and YES, it's incredibly painful to go through. <br /><br />I had lined up a hand surgeon who was willing to use anesthetic for the injections, but my insurance company initially denied coverage for UnaffiliatedIndiehttps://www.blogger.com/profile/17833678458576221794noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-54482362232267139682019-12-05T03:58:10.239-06:002019-12-05T03:58:10.239-06:00There is a safe & effective Natural Herbal Med...There is a safe & effective Natural Herbal Medicine. For Total Cure Call +2349010754824, or email him drrealakhigbe@gmail.com For an Appointment with (Dr.) AKHIGBE contact him. Treatment with Natural Herbal Cure. For:Dengue Fever, Malaria. Painful or Irregular Menstruation. HIV/Aids. Diabetics. Vaginal Infections. Vaginal Discharge. Itching Of the Private Part. Breast Infection. Angelina Keffinoreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-2492075444281964802016-10-25T05:48:49.705-05:002016-10-25T05:48:49.705-05:00Join us on the Dupuytrens Disease Support Group - ...Join us on the Dupuytrens Disease Support Group - nearly 900 patients worldwide discuss the disease, latest treatment options and we are joined by 10 world class physicians treating the diseases who regularly host free Q&A on our forum: https://www.facebook.com/groups/879351412113444/<br />Lesliehttps://www.blogger.com/profile/13935693405396033174noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-37287113536405741392013-01-26T17:57:09.141-06:002013-01-26T17:57:09.141-06:00Thank you all. I am a 70 year woman with Dupytrens...Thank you all. I am a 70 year woman with Dupytrens in both hands and feet but mostly I'm confused. I rread that Xiaflex is no longer manufactured in Germany, hand surgeon I consulted said drug was "dangerous". My father had repeated surgeries and I remember the recurrence after each one.Is NA for moderate stage only and is it covered by Medicare or private insurance? Wondering Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-25988091681755119882012-03-30T23:46:53.835-05:002012-03-30T23:46:53.835-05:00I visited with Clayton Peimer also but did not mee...I visited with Clayton Peimer also but did not meet the requirements to be part of the study.I waited years to have the fda approve the treatment and find a local doctor here in southern michigan only to have to fight with my insurance to get them to pay.Had my first injection in february and the second in march. Finger is almost straight now so it was worth the wait.mikehttps://www.blogger.com/profile/18349315597540371256noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-89374393585831056292012-02-23T15:35:21.372-06:002012-02-23T15:35:21.372-06:00JAMES TAYLOR(ozzie).....ihad surgery on my right h...JAMES TAYLOR(ozzie).....ihad surgery on my right hand(little finger)for dupuytrens..6/7 years ago..the op was good and the little finger straightened out.In the year 2010 i had surgery on my left hand(finger joining little finger)..this was more painfull and took a long time to heal..however.the op finger never straightened out...bad luck! i was a piano playerthe killerhttps://www.blogger.com/profile/02998364901461145179noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-44292077786395762462012-02-23T12:11:59.674-06:002012-02-23T12:11:59.674-06:00I had normal surgery in 2007 on my right hand and ...I had normal surgery in 2007 on my right hand and it was very successful but a painful and long therapy afterwards. I was looking for NA for my left hand and could not get a referral out of system for it via medicare. I got the enzyme injection the other day and they manipulated a couple of painful pops to open up enough so that I can maybe do surgery now. I still lean towards NA and i may justDennis Hallorannoreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-74433423428707831342012-01-31T17:03:37.297-06:002012-01-31T17:03:37.297-06:00Anonymous, since it's been FDA approved they d...Anonymous, since it's been FDA approved they do it with anesthetic so not to worry. Best of luck.Samantha Hoffmanhttps://www.blogger.com/profile/02689498125987433143noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-55063723292140177902012-01-31T16:00:18.784-06:002012-01-31T16:00:18.784-06:00yikes!! I am a surgical RN and gore doesn't bo...yikes!! I am a surgical RN and gore doesn't bother me until it's my own. I am considering this since the recovery time for surgery is 6 weeks or more including therapy post op. I don't have that much time accumulated so the inj. seemed a viable alternative. Hmmm, now I'm not so sure. I'm afraid I'd need some anesthesia even a light MAC--Lucky me, I have DC bilaterally!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-23187585415443327582012-01-16T18:38:40.163-06:002012-01-16T18:38:40.163-06:00Wonderful job on you blog, Samantha. I had surger...Wonderful job on you blog, Samantha. I had surgery on my left hand in Nov 2008 which was very successful and I was happy with the results. Next came the same problem in my right hand and I considered NA and injections and went with the injections as you did. I received the injections on 1-9-12 and they were very painful. On 1-10-12 I went for the manipulation and he didn't numb it like heAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-76036414117034361252009-07-26T19:22:32.120-05:002009-07-26T19:22:32.120-05:00The Killer:
Check out the needle aponeruotomy as w...The Killer:<br />Check out the needle aponeruotomy as well. I don't think the procedure I had is on the market yet. Best of luck to you.<br />SamanthaSamantha Hoffmanhttps://www.blogger.com/profile/02689498125987433143noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-2249754075904591562009-07-24T18:43:32.756-05:002009-07-24T18:43:32.756-05:00DEAR SAMANTHA..I HAVE READ AND SEEN YOUR EXPERIANC...DEAR SAMANTHA..I HAVE READ AND SEEN YOUR EXPERIANCE WITH THIS DREADFULL CURSE(DUPUTRENS).I HAD THE OP 4YEARS AGO..ON RIGHT HAND LITTLE FINGER....IT HAS COME BACK ON MY LEFT HAND..ANOTHER OP? I WILL PURSUE THIS INFORMATION YOU HAVE PROVIDED...THANK YOU VERY MUCH...JIMMY TAYLOR AUSTRALIA.the killerhttps://www.blogger.com/profile/02998364901461145179noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-47463604843609259422009-06-14T22:41:20.272-05:002009-06-14T22:41:20.272-05:00Beaglesnoring,
The doctor who moved to Detroit is ...Beaglesnoring,<br />The doctor who moved to Detroit is Dr. Clayton Peimer. I have no idea where he is now or if he's still involved.<br />Best wishes to you.<br />SamanthaSamantha Hoffmanhttps://www.blogger.com/profile/02689498125987433143noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-80772547895860685972009-06-14T19:46:15.413-05:002009-06-14T19:46:15.413-05:00Bless you Samantha.
I too have a curled up pinky ...Bless you Samantha.<br /><br />I too have a curled up pinky on my left hand that came about rather rapidly in less than a year and a half from when I noticed it. While driving no less and placing my left hand on the steering wheel. One day I noticed it didn't feel right.<br /><br />My right hand many years ago formed a small nodule on the palm. I had no idea what is was and it has never Snoring Beaglehttps://www.blogger.com/profile/07506888142072750636noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-5331095279483188092009-06-06T15:04:47.012-05:002009-06-06T15:04:47.012-05:00David,
Thanks for the personal account about NA. I...David,<br />Thanks for the personal account about NA. Interesting that my hand surgeon never told me about it, but then he IS a surgeon. I'm glad more and more information is coming out about it. A one hour procedure is about the best thing going. Well, really, the BEST thing going is sitting in a French bistro afterwards.<br />Regards, <br />SamanthaSamantha Hoffmanhttps://www.blogger.com/profile/02689498125987433143noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-18503034289472520302009-06-05T23:43:24.670-05:002009-06-05T23:43:24.670-05:00Samantha, (and all)
First off, thank you so much ...Samantha, (and all)<br /><br />First off, thank you so much for documenting your experience and for the opportunity to read and respond in your blog. <br /><br />I am a 43yo guy living in NYC who discovered a nodule under my left pinkie about 15 years ago. Anyway..long story short, after the contracture got way past 90º, I did some much neglected, extensive research and decided to jet off to dvhugheshttps://www.blogger.com/profile/08861398382176484465noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-53130721184927200592009-05-30T12:07:23.457-05:002009-05-30T12:07:23.457-05:00I work for one of the doctors who has been doing N...I work for one of the doctors who has been doing NA for about 5 years, he has been to all the 'sales' meetings the drug company has put on as well, he is well-informed about this and agrees with you, Steve, He will not be offering this drug as NA is so effective and less painful and less costly etc etc etc. He also will not be doing NA on patients who have had this drug injected previously, due Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-81645244511390366112009-02-21T21:21:00.000-06:002009-02-21T21:21:00.000-06:00First a disclaimer. I am an orthopedic hand surgeo...First a disclaimer. I am an orthopedic hand surgeon trained to do traditional Dupuytren's surgery. I learned of the needle aponeurotomy (NA) technique several years ago, and have been doing it for over a year. I also recently attended the annual meeting of the ASSH (Hand surgeon society) in Chicago where a panel of experts discussed the future of Dupuytren treatment in the U.S. The lead Stevehttps://www.blogger.com/profile/02153522604740499405noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-51877996262466478852008-12-16T13:03:00.000-06:002008-12-16T13:03:00.000-06:00Samantha, thanks for your YouTube videos and these...Samantha, thanks for your YouTube videos and these comments that explain in such detail your experience. I so appreciate your openness and willingness to share! I'm a mom of 5, only 41, and diagnosed 6 months ago. I'm already looking for options should my Dupuytren's progress further, and this procedure gives me hope. I'm in southern Ontario, close to both the US border and Toronto. I'd love to Linda Lemstrahttps://www.blogger.com/profile/14783811476030692024noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-22999792292528541992008-11-25T21:12:00.000-06:002008-11-25T21:12:00.000-06:00Thank you, Samantha... for your detailed descripti...Thank you, Samantha... for your detailed description of the collagenase treatment -- which I hope to have done. I sent you an e-mail too, but now I see that you had the procedure done as part of a clinical trial<BR/><BR/>I would love to know if anyone knows of a doctor anywhere who offers this treatment (Canada?, Mexico?)<BR/><BR/>warren.allen@cox.netAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-3521547987127815662008-11-08T11:24:00.000-06:002008-11-08T11:24:00.000-06:00Tim,Yes, the internet is an amazing thing. I didn'...Tim,<BR/>Yes, the internet is an amazing thing. I didn't realize my YouTube videos were on the Dupuytren Society (didn't know there was a society) web page until someone came across it and emailed me. Here's the link to that: http://www.dupuytren-online.info/dupuytren_collagenase.htmls. <BR/>All is well, and yes, I am grateful that Dupuytren's is all I have!<BR/>SamanthaSamantha Hoffmanhttps://www.blogger.com/profile/02689498125987433143noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-61672781138745405532008-11-07T22:02:00.000-06:002008-11-07T22:02:00.000-06:00Hi Samantha,Don't you love the internet. This popp...Hi Samantha,<BR/>Don't you love the internet. This popped into my Google news alerts tonight. We met in Rockford last month as we finished up the clinical trial study. Hope you are well - good luck to all with Dupuytren's, and if possible, be thankful we don't have something worse.Unknownhttps://www.blogger.com/profile/06829484132068578588noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-36132297201400743112008-10-14T18:22:00.000-05:002008-10-14T18:22:00.000-05:00Wow Samantha,I just watched your You tube videos a...Wow Samantha,<BR/>I just watched your You tube videos and could feel the pain...you were very brave.<BR/>I am considering the enzyme treatment myself when it is available.<BR/>Best wishes.Stephenhttps://www.blogger.com/profile/02902748949860535636noreply@blogger.comtag:blogger.com,1999:blog-3005509180620478267.post-13677195432237670632008-10-04T00:25:00.000-05:002008-10-04T00:25:00.000-05:00Hi Samantha, It was nice to meet you Thursday in ...Hi Samantha, It was nice to meet you Thursday in Rockford. My name is Geralyn and my husband Steve was in the study. I read you blog and it was such a familar story that we could have written it martinis and all!! Will let you know when we hear about the date of the commerical for the dupuytren's miracle drug!! (Fox News). My husband works downtown, my my oldest son also works and lives Anonymoushttps://www.blogger.com/profile/16770037359368892618noreply@blogger.com